Update, kinda?

We have chemo. It's been such a weird weekend that I truthfully had to go back and see what I'd written about last. What did I do this weekend? Let's see... Oh yeah.

Spoiler Alert: Boo didn't have Oxycodone.

I got a new (but old) prescription filled for Oxycodone on Tuesday. I say old, because I was prescribed Oxycodone when I was first diagnosed and I barely used it. It expired, and I essentially took it back to the pharmacy where I originally got it so they could safely dispose of it. I didn't like Oxycodone, and in lots of ways - I still don't. The pain I was having was immense, however... And this does the job.

Caremark dropped the ball and I had to wait an extra day for their special order pharmacy to deliver my chemotherapy. I didn't get to start it until Saturday night. I take five capsules once a day, at the same time each day (on an empty stomach).

Actual size* of one Zykadia capsule (*lie)

I woke up Sunday morning and didn't feel too bad. My appetite hasn't been spectacular for a while now, so there wasn't a real change. I felt like I needed less pain medication on Sunday, but still took some. I woke up this morning pretty ill, though - as in sudden onset. My husband had a morning meeting so I asked if he'd swing back and get me a little later so I could get my nausea/vomiting under control.

I relaxed some and even fell asleep, and when I woke he was calling me to ask if I wanted to be picked up. My boss also asked me to make sure I felt well enough to work. I thought about it and still didn't feel right, but could have dealt with it. Then I realized there's a portion of my shift where I would not be able to quickly access a bathroom should I need it, and decided to give myself another day to adjust to the medication. More sleep. Sleep has been nice. I kind of wish I could do it more.

So that's it for now, just hanging in there. I'm sort of tired of winter, I'm sure Boston is more than I am. Can I have sunshine now, please?

I am trying not to post on Facebook much. I realize it probably looks like whining/complaining so I've been hiding from social media overall. I'm pretty happy. I wish I wanted to eat more, but I'm hoping that gets better soon. I wish marijuana was legal in Ohio - I'd love to try some High-CBD edible (low psychoactive - I have had Marinol and I haaaaaaaaated it). Get your heads out of your asses, Ohio. Weed could actually help some people.

I'm a foodie, HONEST! Pass the Lunchables.

Hook. Me. Up. 

Before I started IV chemotherapy I considered myself quite the foodie. I still do, really. It's just... None of that foodie stuff sounds good as of late, and even if it did - I'd be afraid to spend the money on something that will only repulse me 15 minutes later. 

Sorry, chefs.

My husband and I went to a barbecue joint sometime after the first chemo cycle started and I ordered a pulled pork sandwich. I know this place is good, I was looking forward to it. When the food came, I just...Couldn't. I picked at the fries and poked at the sandwich but never actually took a bite. We'd gotten to know the server a little by this point (it was our second visit, I think - and it's a local joint) so when he came to check on us and I hadn't had a bite, he looked concerned. I wasn't going to bring up cancer or chemotherapy, but I felt I owed him an explanation for not eating what was very likely amazing food (we can smell their smoker from our house, it's such a tease). So, I told him that I had just started chemotherapy and I apologized. He understood, said some encouraging words...And my husband got a pulled pork sandwich to take for lunch the next day. 

Some people have described things having a metallic taste, and the only thing that's happened for me with is plain water. Food either just doesn't sound good, or becomes completely disgusting 1/3rd of the way through whatever it is I'm eating. I was warned by nurses not to eat things I like when I feel this way, because it will ruin that meal/food forever. As of now, I'm ruined on Chipotle and Dewey's Pizza. Sorry. 

I presently love the orange chicken my husband makes. I haven't gotten tired of it, so far. I know this is a huge risk, but it's probably one of the few things that I'd still consider to be foodie-esque (I know that's not a real word) that I will eat. If he asks me if I'd want to have it for dinner, I will always say yes. 

Guess what I'm having for dinner tonight? Orange chicken. 

My birthday is coming up, and if I could really have anything in the world, it would be Toll House cookies from my mom, and fried chicken with mashed potatoes and corn (and dinner rolls) made by my dad.  Not pre-made and driven up here, either. I want them to come to our house. I know they can't, but that's what I'd want if I could have anything to eat that I wanted on my birthday. 

This is day 2 after chemotherapy, and I feel okay. I'm tired, and I'm a little stiff. My leg is pretty painful, but the heating pad helps. I stubbornly avoided pain medication today - partially because I couldn't remember if I actually took it. I'm employing the pill case again, don't worry. I'm in good spirits and have had a great day, overall. My husband ran errands and brought home BBQ brisket sandwiches from another local favorite, Mister Brisket. No frills, it was what it was. Delicious. We ate on our balcony/porch, but it was a little chilly. 

I'm on the last day of a three day course of steroids, and as much as I hate them, they've actually helped my appetite, I think. Also instead of Zofran in my pre-meds, I had something called Emend, a long acting anti-nausea/emetic. I like it. I can't take Zofran until tomorrow night because of it, but have been cleared for Compazine or Xanax (evidently that also helps nausea) if I need it. So far, so good. 

There's the chalk festival going on this weekend, and I think we're going to try to make an appearance. Usually I plan out a drawing, but I haven't this year. I may fall back to one of my roses (though I usually chalk birds), because they're so fun and calming to draw. I hope my leg feels better - or I might worry about getting off the ground once I'm done chalking!

There's a bike ride planned for my birthday by my friends who run Slow Roll Cleveland and whether I can ride or not, I will be there. If they promise to make it not hilly, I'll ride as long as I'm able. I miss my bike. With the pain in my leg, my doctor has cleared me for biking so long as it's not strenuous. This is where a vacation to Columbus might do me some good. There's a trail along the river that isn't hilly at all (there are mild inclines, but none I'd really call hills, unless you're exiting the trail and then still - no big deal). 

Back to the food thing, though. I have a food blog I used to write in quite frequently - nowadays I don't know how much help I'd be if I wrote "Chef _______ makes a great foie burger. Tasted like vomit two bites in. Rest of my table assures me it's delish and must be my taste buds.". 

All I can say is,