Thursday, October 23, 2014

High There

I'm sitting in my office waiting for my husband to pick me up from work. Had I known I was going to finish as early as I did, I probably would have found some money for the bus and gone home that way. It's been two hours now, waiting.

Out of nowhere, a scent wafted through my office that smelled like an operating room. It lingered for a few minutes. I was not a fan. Ouchy memories.

I'm pretty anxious about chemo this time. I put it off for a few days because of the schedule at work this week, so I'm not doing it until next Tuesday. I also haven't heard about the PET scan I had this past Monday, so I guess I'm anxious about that too. My assumption is that if anything had been terribly wrong or there was significant (negative) change I'd have gotten a phone call. Who knows?

I don't think I posted this in my blog, but it's been all over Facebook and Twitter - I had an MRI (brain) a couple of weeks back and was told that the largest tumor, the one that is on my brain stem - is totally gone. It was actually a little surreal how the Radiation Oncologist told me, he said it in passing as if it was nothing. It's not nothing... This is a HUGE deal! Oh well.

I got Marinol for nausea and appetite, I chose it over Emend (which was 60 dollars for three pills, Marinol was 15 dollars for 30 pills). It actually worked really well the first few times I took it - I managed to eat an entire plate of food which was not a common occurrence the previous week or two. I took it over the weekend when I was on the way to dinner with family (so I would want to eat) and again the following morning. Dosage says to take it every six hours, but after an hour or two on Sunday I was sitting in the car (not driving, before you ask) and suddenly...



I was actually high/stoned. It was not happy or pleasant, and I slept most of the two hour drive home because I could not deal with how weird I felt. My only theory is that it had been about 12 hours since my previous dose and it hadn't fully metabolized in my system. Needless to say, I'm actually afraid to take it again because the experience was so unpleasant. I'm refilling my Zofran tonight, so that's good.

There isn't much else going on. I'm sleeping well, I'm pretty happy... The pain in my left leg has diminished immensely and I'm actually walking normally most of the time (unless I've been sitting for a long time). I bought some new shoes which are also amazing... And I also think that helps my feet/walking. I'm anxious to feel even better so I can start walking around the neighborhood.

That's all, for now. I went to Amish country but I'll talk about that another time.

3 comments:

  1. I love reading your blogs. It seems I'm sitting with you hearing about your day. Thanks for spending time with me. Love, Aunt Jean

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  2. That is great news about your MRI!!! I was so thrilled to read that. I have been here everyday looking for an update. You are so strong, keep kicking cancer's ass!

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